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Navigating Pregnancy with Scleroderma: What You Need to Know

 

Asian woman dressed in white showing her pregnant belly and holding it while smiling

This is not medical advice, please consult your doctor with questions. 

Pregnancy is an exciting journey, but if you're living with scleroderma, there are additional considerations.

Scleroderma, an autoimmune condition that affects the skin and internal organs, can influence how your body reacts to pregnancy.

Understanding how to manage this balance is key to ensuring a healthy experience for both you and your baby.

Pregnancy and Scleroderma: What Do the Experts Say?

According to research, while systemic scleroderma can pose some risks during pregnancy, these risks can be managed effectively with proper care.

As Dr. Virginia D. Steen, a leading expert on scleroderma, noted, "With close monitoring, most women with scleroderma can have successful pregnancies."

 

Woman's hand showing Raynaud’s phenomenon in her fingertips

Planning and Preparation

Before getting pregnant, have an open discussion with your healthcare provider. They’ll assess your health, discuss potential risks, and help you plan for a safe pregnancy.

This might include adjusting medications and ensuring your heart, lungs, and kidneys are in the best shape possible.

Preparing to handle pregnancy and scleroderma is all about managing the condition and setting yourself up for the healthiest journey possible.

During Pregnancy: What to Expect

Pregnancy with scleroderma requires careful monitoring, with more frequent check-ups to monitor your baby’s development and your health.

Expect tests for blood pressure, kidney function, and lung capacity, as these areas can be affected by scleroderma.

Listen to your body. Fatigue and pain might be more pronounced, and your skin might feel tighter as your belly grows.

Adjusting your routine and leaning on your support system can make a significant difference.

Postpartum Care

After your baby arrives, your body will need time to recover, and your scleroderma may also require extra attention.

Postpartum care is crucial, and maintaining regular check-ups is essential.

Some women find that their symptoms flare up after delivery, so staying on top of your health is key.

Breastfeeding is another consideration. Physical challenges like tight skin or hand mobility issues might make it more difficult. 

Adaptive clothing, such as Springrose’s Easy-on Bra with it's front opening Velcro closure and the optional finger loops, can provide extra support and make feeding time easier.

a woman leaning against a wall, smiling while wearing the Springrose front-closing Velcro bra in lilac

Conclusion

Pregnancy and scleroderma present their challenges, but with careful planning and the right medical support, many women can have successful pregnancies.

Every woman’s journey is unique, so staying informed and working closely with your healthcare team is key.

Remember, your experience is personal, and it’s important to trust your body and your healthcare team.

For more detailed guidance, always consult with your doctor, who understands your specific needs and can help navigate your journey with scleroderma and pregnancy.